I haven't been writing as much as I want to, partly because I haven't really been able to understand what I'm feeling enough to put it into words. Even when I do write, I feel like I'm always starting with some sort of disclaimer along the lines of I don't really know how to describe what I'm feeling, but listen to this bullshit anyway. Or something like that.
I now fully understand what it is that I'm feeling, and I can describe it in a single word. More than anything else, I am
TIRED.
Yeah, there are other emotions going through my head, but all of them are some sort of rendition of TIRED.
TIRED of surgery.
TIRED from surgery.
TIRED of being on crutches.
TIRED from being on crutches.
TIRED of pain.
TIRED from pain.
TIRED of going to doctors.
TIRED from going to doctors.
TIRED of not being able to do all the things I want to do.
TIRED from doing things I shouldn't be doing, but have to do anyway.
TIRED of X.
TIRED of Y.
TIRED of Z.
TIRED from X, Y, and Z.
TIRED of being TIRED.
I'm running out steam.
There are some days when I look forward to dying, being done with all of this. But fortunately, evolution serves me well here; I come from a long line of ancestors - human and pre-human - who are here because we are born with the tools be survivors. That's what organisms do. They survive. The idea that life should give us some sort of fulfillment or self-satisfaction is unique to humans, and a privileged set of humans at that. The rest of the living world just survives.
And so here I am. I'm surviving, and even a little bit more than that. So I'm winning, no?
Last I wrote, I was heading back to work, and my husband was heading out of town for work. In so many ways, the week was hell, but in so many ways, surviving it was so uplifting that I think it did more for my recovery than any other time in this recovery. In fact, right now, I feel
AMAZING.
I realize that I am so, so lucky in so many regards. I have a great support system in place, and for that I am so grateful. My Chair at work has been beyond supportive, and got me a last-minute offload so that I am only teaching 3/4 time this semester. As well, one of my colleagues who is covering one of my classes for me agreed to teach it for two more weeks, through the first exam, so I was able to ease into work by just having one class to worry about. That made going back to work so much less stressful than it would have been otherwise.
Regardless, I feel ridiculously TIRED right now, but the fact that I'm still here and still functioning and I haven't killed one of my kids, and I even managed to get them to school on time all week, is AMAZING.
Laugh if you have to, but it's the little things. For me, it's all about the little things.
And if you put enough little things together, you can get to something big.
Last I wrote, I was worked up about teaching on crutches. Throughout all of this, this has been my biggest source of stress, more than the surgery itself. I am an introvert, which I understand is difficult for people to believe, considering I regularly lecture to large numbers of students for a living. Even after a decade of teaching, I still get nervous to the point of nausea before most of my classes. I realize my students are scrutinizing my every move, and I hate to bring any extra attention to myself by say, oh, arriving to class on crutches. I even hate that I'm using Mobileg crutches, the special ergonomic crutches for people who are going to be on crutches forever and a freaking day, because people notice them, and comment on how fancy they are, and I hate the extra attention of having 'fancy' crutches.
That said, I arrived at my classes on my fancy crutches this week, delivered the damn lectures, and it was very anti-climactic, in a good way. I cared way more about being on crutches than my students did. At least, I think so. Honestly, it was no big deal. The biggest deal was getting to my classroom from my office. I wasn't sure how long it would take me, so on the first day, I left my office 35 minutes before my class started. It only took me about 10 minutes to get to the classroom, so I had 25 minutes before class started, but it was a good thing I did. I was so. damn. TIRED. after making the trek, I needed those 25 minutes to recover. My legs felt like Jello. It was also a little awkward because I was sitting outside the classroom with a number of my students, and they were definitely staring at me, but they didn't say anything to me because they had never seen me before, and most of them are 18-year-olds with worse social skills than I have. LOL. The second class was better, because now that students know who I am, some of them will talk to me before class, so it's not as weird as just sitting there. I also decided that even though I normally leave my cell phone in my office, I should bring it with me to class so I have something to do while I'm waiting.
So while my goal was to just SURVIVE the week, I was pleasantly surprised that I was able to actually make PROGRESS during the week. Even between Monday and Wednesday, I noticed a huge difference in my energy level. And even though my week was beyond exhausting, I made time to go to physical therapy on both Monday and Friday, since Jerry is so helpful.
And as it turns out, Jerry gave me the boost that I needed. He didn't push me a lot in PT, because by going back to work, I'm already doing so much more than I was before. In fact, he told me that the best way for me to gain strength was to sleep more, and nap whenever I can (!!!). (Have I mentioned that I love this guy?)
BUT. What was really the boost that I needed was the reminder that I AM actually progressing, no matter how small the baby steps may seem. At my appointment on Friday, Jerry asked me how I was feeling, and I said that I was feeling about the same as I had before, and I considered that progress, considering how hellish my week had been. Then he asked me how my left hip (non operated hip) was feeling. I said it felt pretty good. Then he asked how my back was feeling. I said it felt pretty good. Then he reminded me that last week, my left hip and my back were both killing me, so the fact that I self-reported them as feeling 'pretty good' was progress. And, the fact that I was progressing despite this hellish week was good news - really good progress - indeed.
Like I said, it's the little things.
They're so little, you don't notice them on a daily basis. But they're there. Jerry had detailed notes from my first visit, and felt good about my progress. I didn't feel good about my progress until he reminded me of my pain levels last week, and the fact that I pretty much couldn't walk at all (AT ALL) the first time I saw him.
He reminded me that this isn't a sprint, it's a marathon. Whenever anyone pulls cliches like this on me, I instinctively pull back and shudder a little bit. Cancerland is full of cliches and cute little sayings like 'cancerversary' that make me want to throw up over and over again, and I'm finding that the hip dysplasia world is no different. So when Jerry told me this recovery is a marathon, I looked him in the eye and informed him that I used to run track, and I was a sprinter. The longest race I was good at was 10 seconds long, so he would have to bear with me and my impatience. I'm not a marathon runner, and never will be.
Nonetheless, slow and steady is my new reality. I've fully bought into the idea that I've gone through way too much to end up with a limp when all of this is said and done. So despite the fact that the slooooooow pace of my recovery is. killing. me, I'm trying so, so hard to be a good patient, and understand that for whatever reason, no matter how infuriating it may be to me, my body needs to take its own sweet time in this recovery.
They say slow and steady wins the race, which I know isn't always true. I beat plenty of slow and steady people in my days as an athlete. But this isn't a race; it isn't a competition. It's only me. As Jerry told me, it isn't as easy as doing three sets of ten, and for people with athletic backgrounds, that can be infuriating.
So... I've had to change my mindset. Rather than seeing my current state of being as something temporary that I must overcome ASAP, somehow in the past week I've changed. I now fully accept that this is completely different from an injury; it is a condition - a permanent one - that I must embrace and deal with. Dude, I'm, like... disabled. It's hard to even write that. But somehow thinking of it this way, rather than, whoa, I've got this injury that's going to take me years to get over, is easier for me. Still, it's hard to wrap my mind around that.
But.
I'm too tired to fight it.
I am so, so tired.
Remember too just HOW MUCH surgery takes out of you. I think it takes a year or even more for a person just to recover from the act of having surgery.
ReplyDeleteAnyway, congrats on making it through that first week and on the PROGRESS you are making!! So glad you have Jerry to remind you of your improvement and helping you take steps, literally and figuratively. It will take a long time...and your life will be better because of it...but it's still so so hard and TIRING. I can only imagine. Sending strength, hugs and good nap vibes!!
Nice post.
ReplyDeleteNo wonder you're tired - you have been through a lot and are going through a lot. BUT I am so happy to hear that you're feeling empowered and uplifted by making it through the week. CONGRATS! I'm sure there will be ups and downs as you go along, but as you say, it's not a competition, it's a long haul, and progress in any form is a good thing. Hope this coming week goes well; glad you have such a great PT!!!
ReplyDelete